The Journal of Pediatrics
Volume 155, Issue 4 , Pages 578-583.e13, October 2009

Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up

  • Aaron J. Goldenberg, PhD, MPH

      Affiliations

    • Department of Bioethics, Case Western Reserve University, Cleveland, OH
    • Center for Genetic Research Ethics and Law, Case Western Reserve University, Cleveland, OH
    • ,
  • Sara Chandros Hull, PhD

      Affiliations

    • Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD
    • Office of the Clinical Director, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD
    • ,
  • Jeffrey R. Botkin, MD, MPH

      Affiliations

    • University of Utah, Salt Lake City, UT
    • ,
  • Benjamin S. Wilfond, MD

      Affiliations

    • Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital, Seattle, WA
    • Department of Pediatrics, University of Washington School of Medicine, Seattle, WA
    • Corresponding Author InformationReprint requests: Benjamin Wilfond, MD, Metropolitan Park West, M/S: MPW 8-2, 1100 Olive Way, Room 876, Seattle WA 98101.

Received 8 July 2008; received in revised form 17 February 2009; accepted 10 April 2009. published online 13 July 2009.

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 The study was supported by National Human Genome Research Institute (S.H and B.W.). J.B. received support for the recruitment of subjects. A. G. was supported by the National Institutes of Health (IH P50HG003390, The Center for Genetic Research Ethics and Law). No statement in this article should be construed as an official position of the National Human Genome Research Institute, National Institutes of Health, or Department of Health and Human Services. The authors declare no conflicts of interest.

PII: S0022-3476(09)00381-3

doi:10.1016/j.jpeds.2009.04.034

The Journal of Pediatrics
Volume 155, Issue 4 , Pages 578-583.e13, October 2009

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