The Journal of Pediatrics
Volume 155, Issue 4 , Pages 542-549.e5 , October 2009

Adolescent Experiences Following Organ Transplantation: A Systematic Review of Qualitative Studies

  • Allison Tong, PhD

      Affiliations

    • Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW 2145, Australia
    • School of Public Health, University of Sydney, Sydney, NSW 2006, Australia
    • Corresponding Author InformationReprint requests: Allison Tong, The Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW 2145, Australia.
    • ,
  • Rachael Morton, MScMed (Clin Epidemiol)

      Affiliations

    • School of Public Health, University of Sydney, Sydney, NSW 2006, Australia
    • ,
  • Kirsten Howard, PhD

      Affiliations

    • School of Public Health, University of Sydney, Sydney, NSW 2006, Australia
    • ,
  • Jonathan C. Craig, PhD

      Affiliations

    • Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW 2145, Australia
    • School of Public Health, University of Sydney, Sydney, NSW 2006, Australia

Received 9 December 2008 ,Revised 2 March 2009 ,Accepted 3 April 2009.

References 

  1. Brosig CL. Psychological functioning of pediatric lung transplant candidates/recipients: a review of the literature. Pediatr Transplant. 2003;7:390–394
  2. McDonald SP, Craig JC. Long-term survival of children with end-stage renal disease. N Eng J Med. 2004;26:2654–2662
  3. Liou TG, Adler FR, Cox DR, Cahill BC. Lung transplantation in children with cystic fibrosis. N Eng J Med. 2007;357:2143–2152
  4. Apajasalo M, Rautonen J, Sintonen H, Holmberg C. Health-related quality of life after organ transplantation in childhood. Pediatr Transplant. 1997;1:130–137
  5. Bernstein DM. Emotional reactions of children and adolescents to renal transplantation. Child Psychiatry Hum Dev. 1970;1:102–111
  6. Fukunishi I, Sugawara Y, Takayama T, Makuuchi M, Kawarasaki H, Yita Y, et al. Maladjustment behaviors in pediatric living-related transplantation. Transplant Proc. 2002;34:2767
  7. Korsch BM, Negrete VF, Gardner JE, Weinstock CL, Mercer AS, Grushkin CM, et al. Kidney transplantation in children: psychosocial follow- up study on child and family. J Pediatr. 1973;83:399–408
  8. Mintzer LL, Stubber ML, Seacord D, Castaneda M, Mesrkhani V, Glover D. Traumatic stress symptoms in adolescent organ transplant recipients. Pediatrivs. 2005;115:1640–1644
  9. Olausson B, Utbult Y, Hansson S, Krantz M, Brydolf M, Lindstrom B, et al. Transplanted children's experiences of daily living: children's narratives about their lives following transplantation. Pediatr Transplant. 2006;10:575–585
  10. Penkower L, Dew MA, Ellis D, Sereika SM, Kitutu JMM, Shapiro R. Psychological distress and adherence to the medical regimen among adolescent renal transplant recipients. Am J Transplant. 2003;3:1418–1425
  11. Durst CL, Horn MV, MacLaughlin EF, Bowman CM, Starnes VA, Woo MS. Psychosocial responses of adolescent cystic fibrosis patients to lung transplantation. Pediatr Transplant. 2001;5:27–31
  12. Sawyer SM, Drew S, Yeo MS, Britto M. Adolescents with a chronic condition: challenges living, challenges treating. Lancet. 2007;369:1481–1489
  13. Dixon-Woods M, Shaw RL, Sagawal A, Smith JA. The problem of appraising qualitative research. Qual Saf Health Care. 2004;13:223–225
  14. Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8:45
  15. Tong A, Sainsbury P, Craig JC. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2008;19:349–357
  16. Freemind, Available from: http://freemind.sourceforge.net/wiki/index.php/Main_Page.
  17. Brosig C, Hintermeyer M, Zotocha J, Behrens D, Mao J. An exploratory study of the cognitive, academic, and behavioral functioning of pediatric cardiothoracic transplant recipients. Prog Transplant. 2006;16:38–45
  18. Crombie A, Franklin PM. Family issues implicit in living donation. Mortality. 2006;11:196–210
  19. Franklin PM, Crombie A. Live related renal transplantation: psychological, social, and cultural issues. Transplantation. 2003;76:1247–1252
  20. Gallo AM, Schultz VA, Breitmayer MJ. Description of the illness experiences by adolescents with chronic renal disease. ANNA J. 1991;19:190–193
  21. Harwood L, Johnson B. Weighing risks and taking chances: adolescents' experiences of the regimen after renal transplantation. ANNA J. 1999;26:17–23
  22. Hudson K, Hiott K. Coping with pediatric renal transplant rejection. ANNA J. 1986;13:261–263
  23. Karrfelt HME, Lindbald FIE, Crafoord J, Berg UB. Renal transplantation: long-term adaptation and the children's own reflections. Pediatr Transplant. 2003;7:69–75
  24. Khan AU, Herndon CH, Ahmadian SY. Social and emotional adaptations of children with transplanted kidneys and chronic hemodialysis. Am J Psych. 1971;127:1194–1198
  25. Lawrence K, Stilley CS, Olshanksy E, Bender A, Webber SA. Further exploration: maturity and adherence in adolescent and young adult heart transplant recipients. Prog Transplant. 2008;18:50–54
  26. Manificat S, Dazord A, Cochat P, Morin D, Plainguet F, Debray D. Quality of life of children and adolescents after kidney or liver transplantation: child, parents and caregiver's point of view. Pediatr Transplant. 2003;7:228–235
  27. McAllister S, Buckner EB, White-Williams C. Medication adherence after heart transplantation. Prog Transplant. 2006;16:317–323
  28. Simons LE, McCormick ML, Mee LL, Blount RL. Parent and patient perspectives on barriers to medication adherence in adolescent transplant recipients. Pediatr Transplant. 2008;
  29. Snethen JA, Broome ME. Adolescents' perception of living with end-stage renal disease. Pediatr Nurs. 2001;27:159–167
  30. Stilley CS, Lawrence K, Bender A, Olshanksy E, Webber SA, Dew MA. Maturity and adherence in adolescent and young adult heart recipients. Pediatr Transplant. 2006;10:323–330
  31. Wise BV. In their own words: the lived experience of pediatric liver transplantation. Qual Health Res. 2002;12:74–90
  32. Harden A, Garcia J, Oliver S, Rees R, Shepherd J, Brunton G, et al. Applying systematic review methods to studies of people's views: an example from public health. J Epidemiol Community Health. 2004;58:794–800
  33. Thomas J, Sutcliffe K, Harden A, Oakley A, Oliver S, Rees R, et al. Children and healthy eating: a systematic review of barriers and facilitators. London: EPPI Centre, Social Science Research Unit, University of London; 2003;
  34. Lincoln Y, Guba E. Naturalistic Inquiry. New York: Sage; 1985;
  35. Smith JM, McDonald RA. Renal transplantation in adolescents. Adolesc Med. 2005;16:201–214
  36. Greco P, Pendley JS, McDonell K, Reeves G. A peer group intervention for adolescents with type 1 diabetes and their best friends. J Pediatr Psychol. 2001;26:485–490
  37. Shah S, Peat JK, Mazurski EJ, Wang H, Sindhusake D, Bruce C, et al. Effect of a peer-led programme for asthma education in adolescents: cluster randomised controlled trial. BMJ. 2001;322:583–585
  38. Gage H, Hampson S, Skinner TC, Hart J, Storey L, Doxcraft D, et al. Educational and psychosocial programmes for adolescents with diabetes: approached, outcomes and cost-effectiveness. Patient Educ Counsel. 2004;53:333–346
  39. Corsini E, Hoffman R, Knight F. Adolescent issues in renal treatment. Adv Ren Replace Ther. 1990;5:120–127
  40. Murray E, Burns J, See TS, Lai R, Nazareth I. Interactive health communication applications for people with chronic disease. Cochrane Database Syst Rev. 2005;1:CD004274

 Supported by in part by a postdoctoral research fellowship funded under the National Health and Medical Research Council Capacity Building Grant in Population Health (ID 457281, to A.T.). The authors declare no conflicts of interest.

PII: S0022-3476(09)00362-X

doi: 10.1016/j.jpeds.2009.04.009

The Journal of Pediatrics
Volume 155, Issue 4 , Pages 542-549.e5 , October 2009

Article Tools

* Image Usage & Resolution