The Journal of Pediatrics
Volume 155, Issue 1 , Pages 12-15 , July 2009

Hypoplastic Left Heart Syndrome: A Paradigm Case for Examining Conscientious Objection in Pediatric Practice

  • Lainie Friedman Ross, MD, PhD

      Affiliations

    • Departments of Medicine, Pediatrics, Surgery and the College, MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL
    • Corresponding Author InformationReprint requests: Lainie Friedman Ross, MD, PhD, University of Chicago, 5841 S Maryland Ave, MC 6082, Chicago IL 60637.
    • ,
  • Joel Frader, MD, MA

      Affiliations

    • Department of Pediatrics and Program in Medical Humanities and Bioethics, Northwestern University's Feinberg School of Medicine, Evanston, IL
    • General Academic Medicine, Children's Memorial Hospital, Chicago, IL

Received 29 October 2008 ,Revised 27 January 2009 ,Accepted 3 March 2009.

References 

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  3. Feudtner C. Ethics in the midst of therapeutic evolution. Arch Pediatr Adolesc Med. 2008;162:854–857
  4. Gordon BM, Rodriguez S, Lee M, Chang RK. Decreasing number of deaths of infants with hypoplastic left heart syndrome. J Pediatr. 2008;153:354–358
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  7. Kon AA. Assessment of physician directiveness: using hypoplastic left heart syndrome as a model. J Perinatol. 2004;24:500–504
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  18. Atallah J, Dinu IA, Joffe AR, Robertson CMT, Sauve RS, Dyck JD, et al. Western Canadian Complex Pediatric Therapies Follow-up Group Two-year survival and mental and psychomotor outcomes after the Norwood procedure: an analysis of the modified Blalock-Taussig shunt and right ventricle-to-pulmonary artery shunt surgical eras. Circulation. 2008;118:1410–1418
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  25. In:  Kattwinkel J editors. American Academy of Pediatrics textbook of neonatal resuscitation. 5th ed. Elk Grove Village, IL: American Academy of Pediatrics; 2006;
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  29. Ross LF, Clayton EW. Who should bear the responsibility?. N Engl J Med. 2007;356:1890
  30. Frader J, Bosk C. The personal is political, the professional is not: conscientious objection to obtaining/providing/acting on genetic information. Am J Med Genet. 2009;151C:62-7

 The authors declare no conflicts of interest.

PII: S0022-3476(09)00221-2

doi: 10.1016/j.jpeds.2009.03.008

The Journal of Pediatrics
Volume 155, Issue 1 , Pages 12-15 , July 2009

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