The Journal of Pediatrics
Volume 154, Issue 3 , Pages 420-425.e1, March 2009

Health-Related Quality of Life in Children with Neurofibromatosis Type 1: Contribution of Demographic Factors, Disease-Related Factors, and Behavior

  • Lianne C. Krab, MSc

      Affiliations

    • NF1 CoRe Team (Cognitive Research Team), Department of General Pediatrics, Erasmus MC–Sophia Children's Hospital, Rotterdam, The Netherlands
    • NF1 CoRe Team (Cognitive Research Team), Department of Neuroscience, Erasmus MC–Sophia Children's Hospital, Rotterdam, The Netherlands
    • ,
  • R. Oostenbrink, MD, PhD

      Affiliations

    • NF1 CoRe Team (Cognitive Research Team), Department of General Pediatrics, Erasmus MC–Sophia Children's Hospital, Rotterdam, The Netherlands
    • ,
  • Arja de Goede-Bolder, MD

      Affiliations

    • NF1 CoRe Team (Cognitive Research Team), Department of General Pediatrics, Erasmus MC–Sophia Children's Hospital, Rotterdam, The Netherlands
    • ,
  • Femke K. Aarsen, MA

      Affiliations

    • NF1 CoRe Team (Cognitive Research Team), Department of Pediatric Neurology, Erasmus MC–Sophia Children's Hospital, Rotterdam, The Netherlands
    • ,
  • Ype Elgersma, PhD

      Affiliations

    • NF1 CoRe Team (Cognitive Research Team), Department of Neuroscience, Erasmus MC–Sophia Children's Hospital, Rotterdam, The Netherlands
    • ,
  • Henriëtte A. Moll, MD, PhD

      Affiliations

    • NF1 CoRe Team (Cognitive Research Team), Department of General Pediatrics, Erasmus MC–Sophia Children's Hospital, Rotterdam, The Netherlands
    • Corresponding Author InformationReprint requests: Prof. Dr. H.A. Moll, Department of General Pediatrics, Erasmus MC–Sophia Children's Hospital, PO Box 2060, 3000 CB Rotterdam, The Netherlands

Received 9 April 2008; received in revised form 2 July 2008; accepted 26 August 2008. published online 28 October 2008.

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 Supported by a grant from the Hersenstichting Nederland to L.C.K. and Y.E., by a grant from the Sophia Foundation for Medical Research to L.C.K., H.A.M and Y.E., and by a donation from the Dutch Neurofibromatosis Foundation (NFVN). The study sponsors had no role in the study design, the collection, analysis, and interpretation of data, the writing of the report, or the decision to submit the manuscript for publication. The authors declare no potential, real, or perceived conflicts of interest.

PII: S0022-3476(08)00760-9

doi:10.1016/j.jpeds.2008.08.045

The Journal of Pediatrics
Volume 154, Issue 3 , Pages 420-425.e1, March 2009

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