The Journal of Pediatrics
Volume 152, Issue 3 , Pages 349-355 , March 2008

Health-Related Quality of Life in Children and Adolescents after Open-Heart Surgery

  • Markus A. Landolt, PhD

      Affiliations

    • Department of Psychosomatics and Psychiatry, University Children’s Hospital, Zurich, Switzerland
  • ,
  • Emanuela R. Valsangiacomo Buechel, MD

      Affiliations

    • Department of Pediatric Cardiology, University Children’s Hospital, Zurich, Switzerland
  • ,
  • Bea Latal, MD, MPH

      Affiliations

    • Child Development Center, University Children’s Hospital, Zurich, Switzerland.

Received 22 December 2006 ,Revised 11 June 2007 ,Accepted 5 July 2007.

References 

  1. Wernovsky G, Shillingford AJ, Gaynor JW. Central nervous system outcomes in children with complex congenital heart disease. Curr Opin Cardiol. 2005;20:94–99
  2. Mussatto K, Tweddell J. Quality of life following surgery for congenital cardiac malformations in neonates and infants. Cardiol Young. 2005;15(Suppl):174–178
  3. Moons P, Van Deyk K, Budts W, De Geest S. Caliber of quality-of-life assessments on congenital heart disease. Arch Pediatr Adolesc Med. 2004;158:1062–1069
  4. Koot HM. The study of quality of life: concepts and methods. In:  Koot HM,  Wallander JL editor. Quality of life in child and adolescent illness. Hove: Brunner-Routledge; 2001;
  5. Culbert EL, Ashburn DA, Cullen-Dean G, Joseph JA, Williams WG, Blackstone EH, et al. Quality of life of children after repair of transposition of the great arteries. Circulation. 2003;108:857–862
  6. Ekman-Joelsson BM, Berntsson L, Sunnegardh J. Quality of life in children with pulmonary atresia and intact ventricular septum. Cardiol Young. 2004;14:615–621
  7. Hovels-Gurich HH, Konrad K, Wiesner M, Minkenberg R, Herpertz-Dahlmann B, Messmer BJ, et al. Long term behavioural outcome after neonatal arterial switch operation for transposition of the great arteries. Arch Dis Child. 2002;87:506–510
  8. Majnemer A, Limperopoulos C, Shevell M, Rohlicek C, Rosenblatt B, Tchervenkov C. Health and well-being of children with congenital cardiac malformations, and their families, following open-heart surgery. Cardiol Young. 2006;16:157–164
  9. McCrindle BW, Williams RV, Mitchell PD, Hsu DT, Paridon SM, Atz AM, et al. Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation. 2006;113:1123–1129
  10. Spijkerboer AW, Utens EMWJ, De Koning WB, Bogers AJJC, Helbing WA, Verhulst FC. Health-related quality of life in children and adolescents after invasive treatment for congenital heart disease. Qual Life Res. 2006;15:663–673
  11. Gupta S, Giuffre RM, Crawford S, Waters J. Covert fears, anxiety and depression in congenital heart disease. Cardiol Young. 1998;8:491–499
  12. Utens EM, Verhulst FC, Duivenvoorden HJ, Meijboom FJ, Erdman RA, Hess J. Prediction of behavioral and emotional problems in children and adolescents with operated congenital heart disease. Eur Heart J. 1998;19:801–807
  13. Vogels T, Verrips GHW, Koopman HM, Theunissen NCM, Fekkes M, Kamphuis RP. TACQOL Manual (Parent Form and Child Form). Leiden: Leiden Center for Child Health and Paediatrics LUMC-TNO; 2000;
  14. Moos RH, Moos BS. Family Environment Scale Manual: Development, Applications, Research. Palo Alto, CA: Consulting Psychologist Press; 1994;
  15. Largo RH, Molinari L, Comenale Pinto L, Weber M, Duc G. Language development of term and preterm children during the first five years of life. Dev Med Child Neurol. 1986;28:333–350
  16. Landolt MA, Nuoffer JM, Steinmann B, Superti-Furga A. Quality of life and psychologic adjustment in children and adolescents with early treated phenylketonuria can be normal. J Pediatr. 2002;140:516–521
  17. Cohen J. A power primer. Psychol Bull. 1992;112:155–159
  18. Bellinger DC, Rappaport LA, Wypij D, Wernovsky G, Newburger JW. Patterns of developmental dysfunction after surgery during infancy to correct transposition of the great arteries. J Dev Behav Pediatr. 1997;18:75–83
  19. Newburger JW, Wypij D, Bellinger DC, du Plessis AJ, Kuban KC, Rappaport LA, et al. Length of stay after infant heart surgery is related to cognitive outcome at age 8 years. J Pediatr. 2003;143:67–73
  20. Landolt MA, Vollrath M, Niggli FK, Gnehm HE, Sennhauser FH. Health-related quality of life in children with newly diagnosed cancer: a one year follow-up study. Health Qual Life Outcomes. 2006;4:63
  21. Landolt MA, Grubenmann S, Meuli M. Family impact greatest: predictors of quality of life and psychological adjustment in pediatric burn survivors. J Trauma. 2002;53:1146–1151
  22. Schmidt S, Debensason D, Mühlan H, Petersen C, Power M, Simeoni MC, et al. The DISABKIDS generic quality of life instrument showed cross-cultural validity. J Clin Epidemiol. 2006;59:587–598
  23. Goldbeck L, Melches J. The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease. Cardiol Young. 2006;16:67–75

 Supported by Foundation Mercator. The sponsor had no influence on study design, the collection, analysis, and interpretation of data, the writing of the report, and the decision to submit the paper for publication.

 Reprint requests: No reprints available from authors.

PII: S0022-3476(07)00662-2

doi: 10.1016/j.jpeds.2007.07.010

The Journal of Pediatrics
Volume 152, Issue 3 , Pages 349-355 , March 2008