The Journal of Pediatrics
Volume 151, Issue 1 , Pages 7-9 , July 2007

Children with Cerebral Palsy Assess Their Parents’ Influence on the Quality of Their Lives: Implications for Intervention

  • Isabelle Rapin, MD

      Affiliations

    • Corresponding Author InformationAddress correspondence to Isabelle Rapin, MD, Room 807, Kennedy Center, Albert Einstein College of Medicine, 1410 Pelham Parkway South, Bronx, NY 10461.

References 

  1. Joesch JM, Smith KR. Children’s health and their mothers’ risk of divorce or separation. Soc Biol. 1997;44:159–169
  2. Varni JW, Burwinkle TM, Sherman SA, Hanna K, Berrin SJ, Malcarne VL, et al. Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. Dev Med Child Neurol. 2005;47:592–597
  3. Ronen GM, Streiner DL, Rosenbaum P. Health-related quality of life in childhood epilepsy: moving beyond “seizure control with minimal adverse effects.”. Health Qual Life Outcomes. 2003;1:36
  4. Goldbeck L. The impact of newly diagnosed chronic paediatric conditions on parental quality of life. Qual Life Res. 2006;15:1121–1131
  5. Beattie PE, Lewis-Jones MS. A comparative study of impairment of quality of life in children with skin disease and children with other chronic childhood diseases. Br J Dermatol. 2006;155:145–151
  6. Aran A, Shalev RS, Biran G, Gross-Tsur V. Parenting style impacts on quality of life in children with cerebral palsy. J Pediatr. 2007;151:56–60
  7. McCarthy ML, Silberstein CE, Atkins EA, Harryman SE, Sponseller PD, Hadley-Miller NA. Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy. Dev Med Child Neurol. 2002;44:468–476
  8. Waters E, Maher E, Salmon L, Reddihough D, Boyd R. Development of a condition-specific measure of quality of life for children with cerebral palsy: empirical thematic data reported by parents and children. Child Care Health Dev. 2005;31:127–135
  9. Blacher J, McIntyre LL. Syndrome specificity and behavioural disorders in young adults with intellectual disability: cultural differences in family impact. J Intellect Disabil Res. 2006;50:184–198
  10. Ronen GM, Rosenbaum MP, Streiner DL. Outcome measures in pediatric neurology: why do we need them?. J Child Neurol. 2000;15:775–780
  11. Waters E, Davis E, Mackinnon A, Boyd R, Graham HK, Kai LS, et al. Psychometric properties of the quality of life questionnaire for children with CP. Dev Med Child Neurol. 2007;49:49–55

 No reprints are available from the author.

PII: S0022-3476(07)00260-0

doi: 10.1016/j.jpeds.2007.03.039

The Journal of Pediatrics
Volume 151, Issue 1 , Pages 7-9 , July 2007

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