« Previous
Next »
The Journal of Pediatrics
Volume 151, Issue 1
, Pages 50-55.e2
, July 2007
Parents’ Perspectives Regarding a Physician-Parent Conference after Their Child’s Death in the Pediatric Intensive Care Unit
References
- . Death: Final Data for 2003. In: National vital statistics reports. Vol 54:Hyattsville, MD: National Center for Health Statistics; 2006;no. 13
- In: Field MJ, Behrman RE editor. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: National Academy Press; 2003;
- Use of intensive care at the end of life in the United States: an epidemiologic study. Crit Care Med. 2004;320:638–643
- . Special concerns for infants and children. In: Curtis JR, Rubenfeld GD editor. Managing Death in the Intensive Care Unit (The Transition from Cure to Comfort). New York: Oxford University Press; 2001;p. 337–347
- . Improving the quality of end-of-life care in the pediatric intensive care unit: parents’ priorities and recommendations. Pediatrics. 2006;117:649–657
- . Parental perspectives on end-of-life care in the pediatric intensive care unit. Crit Care Med. 2002;30:226–231
- . Family perspectives on the quality of pediatric palliative care. Arch Pediatr Adolesc Med. 2002;156:14–19
- . Hospital staff and family perspectives regarding quality of pediatric palliative care. Pediatrics. 2004;114:1248–1252
- Parental perspectives on hospital staff members’ acts of kindness and commemoration after a child’s death. Pediatrics. 2005;116:884–890
- . Medical education about end-of-life care in the pediatric setting: principles, challenges, and opportunities. Pediatrics. 2000;105:575–584
- . Pediatric resident education in palliative care: a needs assessment. Pediatrics. 2006;117:1949–1954
- . The management of bereavement on intensive care units. Intensive Care Med. 1995;21:429–436
- . Attitudes about end-of-life care: a national cross sectional study. J Palliat Med. 1998;1:347–355
- . Palliative care for children. Pediatrics. 2000;106:351–357
- . In: Witholding or Withdrawing Life Sustaining Treatment in Children: A Framework for Practice. 2nd ed.. London: Royal College of Paediatrics and Child Health; 2004;Available at: http://www.rcpch.ac.uk/publications/recent_publications/witholding.pdf. Accessed August 25, 2006.
- Recommendations for end-of-life care in the intensive care init: The Ethics Committee of the Society of Critical Care Medicine. Crit Care Med. 2001;29:2332–2348
- Collaborative Pediatric Critical Care Research Network (CPCCRN). Pediatr Crit Care Med. 2006;7:301–307
- National Institutes of Health. HIPAA privacy rule. Information for researchers. Available at: http://www.privacyruleandresearch.nih.gov/pr_08.asp#83. Accessed August 25, 2006.
- . Bereavement support following sudden and unexpected death: guidelines for care. Arch Dis Child. 2002;87:36–39
- . Handbook of Bereavement-Theory, Research and Intervention. Cambridge, UK: Cambridge University Press; 1993;
- . Meetings with parents after the death of their child from leukemia. Pediatr Hematol Oncol. 1989;6:155–160
- . Parents interviewed after their child’s death. Arch Dis Child. 1986;61:711–715
- . Survey of bereaved parents. Can Med Assoc J. 1986;134:38–42
- . Modes of death in the pediatric intensive care unit: withdrawal and limitation of intensive care. Crit Care Med. 1993;21:1798–1802
- . Grounded theory (Objectivist and constructivist methods). In: Denzin NK, Lincoln YS editor. Handbook of Qualitative Research. 2nd ed.. Thousand Oaks, CA: Sage Publications, Inc; 2000;p. 509–535
- . Is verbatim transcription of interview data always necessary?. Appl Nurs Res. 2006;19:38–42
- . Bereavement in paediatric intensive care. [editorial] Paediatr Anaesth. 2003;13:651–654
- . Follow up care of bereaved parents after treatment withdrawal from newborns. Arch Dis Child Fetal Neonatal Ed. 2001;84:F125–F128
- . Bereavement follow-up after critical illness. Crit Care Med. 2000;28:1196–1201
- . Social relationships and health. In: Cohen S, Underwood LG, Gottlieb BH editor. Social Support Measurement and Intervention: A Guide for Health and Social Scientists. Oxford, UK: Oxford University Press; 2000;p. 3–25
- . Toward interventions to improve end-of-life care in the pediatric intensive care unit. Crit Care Med. 2006;34:S373–S379
- . The spiritual needs of parents at the time of their child’s death in the pediatric intensive care unit and during bereavement: a qualitative study. Pediatr Crit Care Med. 2005;6:420–427
- Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Crit Care Med. 2004;32:1484–1488
- . On speaking less and listening more during end-of-life family conferences. Crit Care Med. 2004;32:1609–1611
- . Parental coping and bereavement outcome after the death of a child in the pediatric intensive care unit. Pediatr Crit Care Med. 2001;2:324–328
The study was funded by cooperative agreements from the National Institute of Child Health and Human Development and the Department of Health and Human Services (U10HD050096, U10HD049981, U10HD500009, U10HD049945, U10HD049983, U10HD050012 and U01HD049934).
PII: S0022-3476(07)00122-9
doi: 10.1016/j.jpeds.2007.01.050
© 2007 Mosby, Inc. All rights reserved.
« Previous
Next »
The Journal of Pediatrics
Volume 151, Issue 1
, Pages 50-55.e2
, July 2007
