The Journal of Pediatrics
Volume 150, Issue 2 , Pages 185-191 , February 2007

Parental Depression Following the Early Diagnosis of Cystic Fibrosis: A Matched, Prospective Study

Received 4 November 2005 ,Revised 26 August 2006 ,Accepted 1 November 2006.

References 

  1. Bobadilla JL, Macek M, Fine JP, Farrell PM. Cystic fibrosis: A worldwide analysis of CFTR mutations - correlation with incidence data and application to screening. Hum Mutat. 2002;19:575–606
  2. Murray J, Cuckle H, Taylor G, Littlewood J, Hewison J. Screening for cystic fibrosis. Health Technol Assess. 1999;3:1–97
  3. Southern KW. Newborn screening for cystic fibrosis: the practical implications. J R Soc Med. 2004;97:1–3
  4. McCollum AT, Gibson LE. Family adaptation to the child with cystic fibrosis. J Pediatr. 1970;77:571–578
  5. Cowen L, Corey M, Keenan N, Simmons R, Arndt E, Levison H. Family adaptation and psychosocial adjustment to cystic fibrosis in the preschool child. Soc Sci Med. 1985;20:553–560
  6. Sabbeth BF, Leventhal JM. Marital adjustment to chronic childhood illness: a critique of the literature. Pediatrics. 1984;73:762–768
  7. Goldberg S, Morris P, Simmons R, Fowler RS, Levison H. Chronic illness in infancy and parenting stress: a comparison of three groups of parents. J Pediatr Psychol. 1990;15:347–358
  8. Quittner AL, DiGirolamo AM, Michel M, Eigen H. Parental response to cystic fibrosis: a contextual analysis of the diagnosis phase. J Pediatr Psychol. 1992;17:683–704
  9. Quittner AL, Espelage DL, Opipari LC, Carter B, Eid N, Eigen H. Role strain in couples with and without a child with a chronic illness: associations with marital satisfaction, intimacy, and daily mood. Health Psychol. 1998;17:112–124
  10. Thompson RJ, Gustafson KE. Adaptation to Chronic Childhood Illness. Washington, DC: American Psychological Association; 1996;
  11. Lewinsohn PM, Klein DN, Durbin EC, Seeley JR, Rohde P. Family study of subthreshold depressive symptoms: risk factor for MDD?. J Affect Disord. 2003;77:149–157
  12. Murray L, Fiori-Cowley A, Hooper R, Cooper PJ. The impact of postnatal depression and associated adversity on early mother-infant interactions and later infant outcome. Child Dev. 1996;67:2512–2526
  13. Puckering C. Annotation: maternal depression. J Child Psychol Psychiatry. 1989;30:807–817
  14. Hay DF, Pawlby S, Sharp D, Asten P, Mills A, Kumar R. Intellectual problems shown by 11-year-old children whose mothers had postnatal depression. J Child Psychol Psychiatry. 2001;42:871–889
  15. Hay DF, Pawlby S. Prosocial development in relation to children’s and mothers’ psychological problems. Child Dev. 2003;74:1314–1327
  16. Hay DF, Pawlby S, Angold A, Harold GT, Sharp D. Pathways to violence in children of mothers who were depressed postpartum. Dev Psychol. 2003;39:1083–1094
  17. Mérelle ME, Huisman J, Alderden-van der Vecht A, Taat F, Bezemer D, Griffioen RW, et al. Early versus late diagnosis: psychological impact on parents of children with cystic fibrosis. Pediatrics. 2003;111:346–350
  18. Simmons RJ, Goldberg S, Washington J, Fischer-Fay A, Maclusky I. Infant-mother attachment and nutrition in children with cystic fibrosis. J Dev Behav Pediatr. 1995;16:183–186
  19. Farrell MH, Farrell PM. Newborn screening for cystic fibrosis: ensuring more good than harm. J Pediatr. 2003;143:707–712
  20. Tluczek A, Clark R, Koscik RL, Farrell PM. Mother-infant relationships in the context of neonatal CF diagnosis: preliminary findings. Pediatr Pulmonol. 2005;(suppl 28):179–180
  21. Abidin RR. Parenting Stress Index. Psychological Assessment Resources, Inc; 1995;
  22. Murray L, Stanley C, Hooper R, King F, Fiori-Cowley A. The role of infant factors in postnatal depression and mother-infant interactions. Dev Med Child Neurol. 1996;38:109–119
  23. Rosenfeld M, Davis R, FitzSimmons S, Pepe M, Ramsey B. Gender gap in cystic fibrosis mortality. Am J Epidemiol. 1997;145:794–803
  24. Quittner AL, Opipari LC. Differential treatment of siblings: interview and diary analyses comparing two family contexts. Child Dev. 1994;65:800–814
  25. Beck AT, Steer RA, Brown GK. Beck Depression Inventory (BDI-II) - Manual. San Antonio: The Psychological Corporation, Harcourt Brace & Company; 1996;
  26. Dozois DJA, Dobson KS, Ahnberg JL. A psychometric evaluation of the Beck Depression Inventory - II. Psychol Assess. 1998;10:83–89
  27. Kendall PC, Hollon SD, Beck AT, Hammen CL, Ingram RE. Issues and recommendations regarding use of the Beck Depression Inventory. Cognitive Therapy Res. 1987;11:289–299
  28. Steer RA, Cavalieri TA, Leonard DM, Beck AT. Use of the Beck Depression Inventory for primary care to screen for major depression disorders. Gen Hosp Psychiatry. 1999;21:106–111
  29. Lasa L, Ayuso-Mateos JL, Vázquez-Barquero JL, Díez-Manrique FJ, Dowrick CF. The use of the Beck Depression Inventory to screen for depression in the general population: a preliminary analysis. JAffect Disord. 2000;57:261–265
  30. Altman DG, Machin D, Bryant TN, Gardner MJ. Statistics with Confidence: Confidence Intervals and Statistical Guidelines.. Bristol: BMJ Books; 2000;
  31. Rothman KJ, Greenland S. Modern Epidemiology. Philadelphia: Lippincott-Raven; 1998;
  32. Greenland S, Robins JM. Estimation of a common effect parameter from sparse follow-up data. Biometrics. 1985;41:55–68

 Dr Glasscoe was funded by a NHS North West Region PhD Training Fellowship.

PII: S0022-3476(06)01084-5

doi: 10.1016/j.jpeds.2006.11.022

The Journal of Pediatrics
Volume 150, Issue 2 , Pages 185-191 , February 2007